<p>Bwembya's mother is a story of the journey of a woman who shows courage and resilience in the face of adversity.&nbsp;The story gives an insight into the challenges of living with the inevitability of the loss of a child with a rare metabolic disorder.&nbsp;In between the sadness there are great joys and celebration of life at every turn.&nbsp;Bwembya's mother did not let what happened to her define who she was she let what happened to her refine who she became.&nbsp;A person who found her voice and spoke up for herself her child and for other people.</p><p><br></p><p>Patricia Kasengele has qualifications in Social Work and Social Policy experience in government and non-government organisations. She co-authored a chapter of a clinical handbook in adolescent medicine. She was inspired to write about her experience as a mother of a child with a chronic illness.</p><p><br></p>