HANDBOOK ON AGEING WITH DISABILITY

<p>Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems. </p><p>The <i>Handbook on Ageing with Disability</i> is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries. </p><p>Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families. </p> <p><strong>Part 1. Framing the Ageing with Disability Experience</strong> 1. Understanding Ageing with Disability <i>Michelle Putnam, Caitlyn E. Coyle, Lydia P. Ogden, and Christine Bigby </i>2. Rethinking the Concept of Successful Ageing: A Disability Studies Approach <em>Tove Harnett, </em><em>Annika Taghizadeh Larsson, and </em><em>Håkan Jönson </em>3. Ageing with Lifelong Disability: Individual Meanings and Experiences Over Time <i>Lieke van Heumen </i>4. Integrating Critical Disability Studies and Critical Gerontology to Explore the Complexities of Ageing with Disabilities <i>Hailee M. Yoshizaki-Gibbons </i>5. Social and Environmental Determinants of the Health of People with Disabilities <i>Eric Emerson, Zoe Aitken, Hannah Badland, Nicola Fortune, Celia Green, and Jerome N. Rachele </i>6. Reducing the Shared Burden of Chronic Conditions among Persons Ageing with Disability and Older Adults in The United States Through Bridging Ageing and Disability <i>Margaret L. Campbell and Michelle Putnam </i>7. Segmenting Ageing and Disability Policy: Ethical Concerns <i>Jerome Bickenbach </i><b>Part 2. Diverse Experiences of Ageing with Disability </b>8. Understanding the Experience of Growing Older with Cerebral Palsy <i>Laura R. Moll and Cheryl A. Cott </i>9. Ageing with Deaf Blindness <i>Peter Simcock & Jill Manthorpe </i>10. Ageing, Serious Mental Illness, and Perceptions of Self Over the Life Course <i>Lydia P. Ogden </i>11. Ageing and Brain Injury: Long-Term Outcomes in Adults <i>Angela Colantonio and Melissa Biscardi </i>12. Ageing with Multiple Sclerosis <i>Marcia Finlayson, Michelle Ploughman, Julie Pétrin, & Roshanth Rajachandrakumar </i>13. Ageing When Being Autistic <i>Hilde M. Geurts, Rebecca Charlton, and Lauren Bishop </i><b>Part 3. Forwarding Social Inclusion </b>14. Community Participation and Engagement for Persons Ageing with Physical Disability <i>Rachel Heeb, Courtney Weber, Jessica Dashner and Kerri Morgan </i>15. Design for One is Design for All: The Past, Present, and Future of Universal Design as a Strategy for Ageing-In-Place with Disability <i>Jon A. Sanford & Elena T. Remillard </i>16. Support For Decision-Making As People Age With A Cognitive Impairment <i>Terry Carney and Shih-Ning Then </i>17. Internalised Ageism And The User Gaze In Eldercare: Identifying New Horizons Of Possibilities Through The Use Of A Disability Lens <i>Håkan Jönson, Annika Taghizadeh Larsson,and Tove Harnett </i>18. Creating Age And Disability Friendly Communities To Support Healthy And Meaningful Ageing <i>Friedrich Dieckmann and Christiane Rohleder </i><b>Part 4. Intellectual Disability As A Case Example </b>19. The Emergence Of Ageing With Long-Term Disability Populations <i>Philip McCallion, Lisa Ferretti, and Mary McCarron </i>20. Health And Wellness Among Persons Ageing With Intellectual Disability <i>Darren McCausland, Philip McCallion, and Mary McCarron </i>21. Retirement For People With Intellectual Disability: Policy, Pitfalls, And Promising Practices <i>Christine Bigby </i>22. Family Caregiving For Adults Ageing With Intellectual And Developmental Disabilities <i>Tamar Heller, Sumithra Murthy, and Catherine Keiling Arnold </i>23. Ageing With Intellectual Disability In Sweden: Participation And Self Determination <i>Mia Jormfeldt and Magnus Tideman </i>24. Towards Untangling The Ageing Riddle In People With Intellectual Disabilities: An Overview Of Research On Frailty And Its Consequences <i>Josje D. Schoufour, Dederieke Maes Festen, Alyt Oppewal, and Heleen M. Evenhuis </i>25. How To Avoid Early Frailty In People With Intellectual Disabilities? <i>Heleen M. Evenhuis, Josje D. Schoufour, Alyt Oppewal, and Dederieke Festen </i>26. Dementia Care For Persons Ageing With Intellectual Disability: Developing Non-Pharmacological Strategies For Support <i>Karen Watchman and Kate Mattheys </i>27. End-Of-Life Care For Adults With Intellectual Disabilities <i>Teresa Moro and Jacqueline McGinley </i><b>Part 5: Policies to Support Persons Aging with Disability </b>28. Responding To Changing Workforce Realities: One Profession’s Experience <i>Fintan Sheerin, Philip McCallion, and Mary McCarron </i>29. Ageing In Place In Group Homes: An Australian Context <i>Tal Araten-Bergma and Christine Bigby </i>30. Support, Service Policies, And Programs For Persons Ageing With Disabilities In Korea <i>Kyung Mee Kim and Seung Hyun Roh </i>31. Trends In Integrating Long-Term Services And Supports In The United States <i>Michelle Putnam and Caitlyn E. Coyle </i>32. Access To Assistive Technology In Canada <i>Rosalie H. Wang and Michael G. Wilson </i>33. Ageing With Disability: Using Financial Mechanisms To Facilitate Intersectoral Collaboration <i>David McDaid and A-La Park </i>34. Enabling A Good Old Age For People Ageing With Disability: Reflections On Progress <i>Christine Bigby and Michelle Putnam</i></p>