Hello My Name is Ken

A life lived a journey taken an ending no one could believe. Ken had Down Syndrome and as he aged he developed Alzheimers. He was only 48. The genetics that caused his Downs also predisposed him to this disease.He lived a life full of love compassion accomplishments challenges and victories. Like most people with Downs he brought more love into this world than many of us will ever achieve. Within the pages of this book are some of the wonderful stories of his life. Each one a glimpse into who he was each one ending with how Alzheimers took that away.So many people who met Ken after Alzheimers had taken hold assumed he must have been like that his whole life. For me this was a heartbreaking eye-opener prompting me to tell the world just how amazing my big brother was.It also became clear that there were gaps between what Ken needed for care and what was available. My hope is that his story will inspire the changes we need in our healthcare systems and other organizations to provide the level of care empathy love and understanding required for those aging with Down Syndrome.People with Downs are valuable members of our society whocontribute in incredible ways. Not all will develop Alzheimers but Down Syndrome adults with Alzheimers will become more common as they too are living longer. We need to understand what that looks like and how to help them. All proceeds from this bookgo to a foundation created for this cause.