Impact of sickle cell disease on the carer

Sickle cell disease is a genetic blood disorder that causes haemoglobin to undergo polymerisation acquiring a sickle-like appearance. Children and adolescents with the disease experience various symptoms including pain with intense and frequent crises. In addition sickle cell disease requires a great deal of assistance from caregivers who due to the routine of care and the dependence of patients may have their physical and mental health impaired.