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About The Book
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Estimated to occur once in every 15000 births Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities problem behaviors and most pervasively chronic hunger that leads to dangerous overeating and its life-threatening consequences. Insatiable: A Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of Violet a young girl with Prader-Willi Syndrome. For Violet Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.