Prism: Shedding Light on Life with Duchenne
English


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About The Book

In this refreshingly relatable memoir David K. humanizes the experience of life with Duchenne muscular dystrophy. His many poignant recollections act as a prism making the invisible visible and demystifying the reality of having this neuromuscular disease. Among his many experiences: Being a normal college student: living away from home staying in a dorm learning independence partying Confronting his early mortality at the age of 13 and being entirely unprepared to deal with itKissing a girl for the first time at age 19 and realizing that women could indeed be interested in someone with a severe disabilityLearning he needed a ventilator the hard way: nearly suffocating when out with friends and rushing home in a panicDavid does not sugarcoat anything nor does he spout a lot of empty inspirational rhetoric. All he does is peel back the curtain and show what its really like to live with a disability.
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