Smiles & Duct Tape

No one would have ever imagined the Torreys leaving the house armed with a supply of emergency medication and a list of top neurologists or ever needing to change their teenage sons diaper at 36000 feet. Thats the thing about life -- there is so much you cant imagine until it happens. You just need to figure out how youre going to get through it and more importantly whats going to hold you together. Smiles and Duct Tape follows the Torreys on their harrowing journey through Adrenoleukodystrophy (ALD) the rare and cruel disease that forever changed their sons life. Its far from the journey they embarked on when they started their family but they have managed not only to survive but also enjoy the ride. A powerful and transformative story of a familys courage and willingness to carry on and live their new normal with grace humor and incredible strength.